PCORI Grant Establishes Nationwide Pediatric Data-Sharing Network

The Patient-Centered Outcomes Research Institute has dedicated $7 million to the creation of an eight-hospital pediatric data-sharing network to fuel research initiatives.

Mark Del Beccaro, MD, vice president of medical affairs at Seattle Children's, a participating hospital, told the Seattle Times the new network represents a first for large-scale pediatric data exchange. "Nobody has been able to do this in the past — ever," he said.

In its first 18 months, developers working on the new PEDSnet will focus on achieving data interoperability and setting up appropriate data safeguards. The ultimate goal of the network is to aggregate pediatric records to provide researchers with as much information as possible on children's disorders, many of which are rare and have limited data available, according to the Seattle Times.

Participating hospitals include Seattle Children's, the Children's Hospital of Philadelphia, Cincinnati (Ohio) Children’' Hospital Medical Center, Children's Hospital Colorado in Aurora, Nemours Children's Health System in Jacksonville, Fla., Nationwide Children's Hospital in Columbus, Ohio, St. Louis Children's Hospital and Boston Children's Hospital.

More Articles on Data Sharing:

CMS Launches Virtual Research Data Center for Data Sharing
Maine Connects VA Facilities to Statewide HIE
Mayo Clinic's App and the Future of Patient Engagement

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