Ms. Gleason contracted meningitis while receiving an infusion for an autoimmune condition. In the video she is speaking to her mother about her frustrations with not being able to sleep, and thus not being able to engage in her care. With adequate rest, she says, she’ll be much more likely to engage in her care and work together with clinicians.
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Ms. Gleason’s main message is one of patient-centricity not often heard in such a direct manner: “I am the patient, I need to be heard…If you’re about to poke me with a needle, if you’re about to cut off my arm, tell me. I need to know,” she says.
Watch the video here.
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