ONC Investigates Patients' Concerns About Health Information Exchanges

When asked what they want to know before making a decision to participate in a health information exchange, patients said they would like to know who their information would be shared with, what type of information would be shared and if they could change their decision in the future, according to a survey conducted by HHS' Office of the National Coordinator for Health Information Technology.

The survey was part of formative research for the eConsent Trial Project, sponsored by the ONC. The project's leader gave a status report Jan. 8 to the federal Health Information Technology Policy Committee.

The eConsent Trial Project is designed to educate patients about their options to make individual choices about whether they want their healthcare provider to share and/or access their health information through an HIE. The project was launched Oct. 22, 2012 at four healthcare provider facilities in western New York.

Findings from the project's survey include:

• Patients are interested in knowing how individuals would use their health information if they had access.
• Patients are concerned about misuse of information, privacy and how information is secured.
• Patients want to know what information would be shared with payors, if sensitive health information would be released and if they can opt out of an HIE after initially giving consent.

To view the presentation that covered the eConsent Trial Project and survey results, click here.

More Articles on Health Information Exchanges, Patient Privacy Concerns:

ONC to Develop Patient E-Consent Pilot
White House Calls for Use of Standard Language in Health Information Exchanges
Government Panel Rules Health Information Exchanges Must Have Patient Consent

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