The study “Glad You Asked” examines patients’ preferences while participating in UW’s Electronic Medical Records and Genomics Network. Participants included volunteers involved in a separate Group Health-UW “Adult Changes in Thought” study, which reports aging-related changes in patients over time.
Of the 365 ACT participants who agreed to share genetic medical information, 90 percent said they found it crucial to be asked again for consent, or give “reconsent,” to having their genetic medical information shared. Researchers have defined reconsent as getting additional informed consent from patients before having their medical information shared for a purpose beyond what was originally agreed upon.
Additionally, 70 percent of surveyed participants found it unacceptable to not have received permission nor notification of having their information used for another purpose, even though they originally agreed to sharing it in the first place.
Read the Healthcare IT News report about the “Glad You Asked” study.
Read other coverage about healthcare information technology:
– Detroit Medical Center Reports $5M Savings After Implementing EMRs
– Markle Foundation Urges Healthcare Industry to Adopt “Blue Button”
– Allscripts and Eclipsys Merge to Create Largest Healthcare Network
