Treatment for rare degenerative neuromuscular disease earns orphan drug status

The Food and Drug Administration granted orphan drug status to Firdapse, an experimental treatment for patients with myasthenia gravis, a degenerative neuromuscular disease similar to Parkinson’s or Lou Gehrig’s disease, according to South Florida Business Journal.

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The Orphan Drug Designation program offers various incentives for drugmakers to develop treatments for rare diseases that affect fewer than 200,000 Americans.

Firdapse is intended to treat about 5 percent of the myasthenia gravis patient population — around 4,500 people — who suffer from a specific type of the disease.

Catalyst Pharmaceuticals, located in Coral Gables, Fla., developed the drug. The company laid off a number of employees in May to fund additional trials of Firdapse.

Controlled trials of the drug are underway and Catalyst expects results in early 2017. The company will launch late-stage trials of the drug pending positive trial results and additional funding.

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