In an update on their website, the couple said The Charlie Gard Foundation will support “other children with mitochondrial diseases and rare childhood illnesses” and serve as a hub of information “for parents that may find themselves in a situation like [theirs].”
“There needs to be more clarity for parents about parental rights when it comes to making life-saving decisions about their children. Access to medical treatment, and expert clinicians, should never be denied if funds are available. We will be looking at ways in which we can help make things clearer for families and hospitals alike,” the couple wrote.
All of the approximately $1.58 million raised through the couple’s GoFundMe page will go directly to the foundation. The GoFundMe organization also agreed to donate $11,740 to the foundation.
More articles on hospital-physician relationships:
U of Kentucky physicians, faculty rally around surgeon stripped of privileges
Oregon hospitals stock up on snakebite antidote, blood supplies ahead of eclipse
University of Buffalo welcomes largest-ever class of medical school students
Becker’s 3rd Annual Fall Chief Pharmacy Officer Summit is the top tier event that the people leading the future of pharmacy convene. This 3-day event is built specifically for Chief Pharmacy Officers and senior pharmacy leaders. The sessions examine the workforce, financial and clinical priorities shaping pharmacy today. Becker’s is where candid discussions flourish and new ideas thrive. Becker's 3rd Annual Fall Chief Pharmacy Officer Summit
