Led by the White House Office of Science and Technology Policy, HHS’ Office for Civil Rights and the National Institutes of Health, the work group developed privacy and trust principles in the following six categories:
1. Governance
2. Transparency
3. Respecting participant preferences
4. Participant empowerment through access to information
5. Data sharing, access and use
6. Data quality and integrity
To read the privacy and trust principles in full, click here.
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4 ways to protect patient privacy when sharing genome data
Boston company partners with Genomics England to sequence 100k genomes
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