Patients Wary of Secondary EHR Data Use, Study Finds

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Patients care more about the purpose of secondary electronic health record data use than the user of the data or the sensitivity of the data, according to an article in JAMA Internal Medicine.

Researchers surveyed more than 3,300 adult patients, describing a scenario in which data from their personal health record was used either by a university hospital, commercial enterprise or public health department for research, quality improvement or commercial marketing. Researchers described the hypothetical data as either having genetic information about a particular patient's cancer risk or not.

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Once given a scenario, patients rated their willingness to share their EHR on a scale from one to 10, with one representing low willingness and 10 representing high willingness.

Sensitivity had no bearing and user information had a moderate bearing on whether or not participants felt willing to share their personal electronic health record data.

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