Researchers surveyed more than 3,300 adult patients, describing a scenario in which data from their personal health record was used either by a university hospital, commercial enterprise or public health department for research, quality improvement or commercial marketing. Researchers described the hypothetical data as either having genetic information about a particular patient’s cancer risk or not.
Once given a scenario, patients rated their willingness to share their EHR on a scale from one to 10, with one representing low willingness and 10 representing high willingness.
Sensitivity had no bearing and user information had a moderate bearing on whether or not participants felt willing to share their personal electronic health record data.
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