“Patients and their families have the right to know the expected outcomes of treatments they will receive,” Jeffrey Jacobs, MD, chief of the division of cardiovascular surgery at the Johns Hopkins All Children’s Heart Institute in St. Petersburg, Fla., said in a statement. “It it’s time to collaborate to not only provide the best care for patients with congenital and pediatric heart disease, but to also help parents…make informed decisions about their child’s healthcare.”
Hundreds of pediatric heart experts will meet during the summit to discuss how best to enable transparency and public reporting, and how to best collect and access that data. The conference will be held at the All Children’s Hospital Outpatient Care Center in St. Petersburg, Fla.
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