Surveys: Most Patients Would Share Health Information on Social Media, If Anonymously

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A recent discussion paper from the Institute of Medicine reveals 94 percent of adult social media users with a medical condition would be willing to share their health data anonymously to help improve care delivery.

The discussion paper, citing the results of two online surveys with a total of 4,100 responses, also showed about three-quarters of respondents to believe their medical information could be used against them if not properly protected. Respondents were mostly concerned information about medical conditions could be used to deny them health benefits or job opportunities in the future.

The authors advocate for data policies that allow Internet users to securely share health information while protecting them from the potential fallout of discussing a medical condition online.

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