Through a partnership with Verizon, the hospital has distributed free iPhones to families of sickle cell disease patients that contain the patient’s complete PHR. Families then have their child’s medical records on hand in the event an emergency requires them to visit another hospital.
The program was recently recognized by the ONC for using health IT to improve the care experience for patients. “This pilot at Children’s Medical Center fundamentally changes the role of the patient. We believe this gives them the opportunity to own their data, to control it, to learn more about how they’re doing and coordinate their care across all these providers,” said Lee Stevens, policy director of the state health information exchange program at the ONC. “I think everyone understands the value of this, and they’re excited about the path ahead.”
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